Me!

Please visit my website http://mycrazycolon.com Hope to see you there!

I was diagnosed with Idiopathic Gastroparesis (Delayed Stomach Emptying) in March 2008…by August 2008…I had my gallbladder and entire stomach removed…in May 2009…I became ill once again…having no luck in finding out what was wrong after a lengthy hospital stay…I was sent to The Cleveland Clinic…where after numerous testing…I was diagnosed  with Colon Inertia (slow motility of the colon) and Pelvic Floor Dysfunction.

To put it simple. I don’t eat (I do all liquids if I am good) and I don’t poop.

You can laugh, it’s ok…I do…

Because Life is good…And Life doesn’t stop…so

I am waiting patiently for the next stop on my journey…I just really hope it involves Strawberry Cheesecake! 

                                            

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28 thoughts on “Me!

  1. Thank you so much for subscribing. I, too, am going to the Dr often, but nothing to extreme, it just seems I have a bladder like an older woman instead of my age haha! I am following you 🙂

  2. You had your entire stomach removed? Just caught this. A bit late to the show here but . Wow. What an ordeal. I’m sorry you had to go through all of this but kudos for you for writing about it. We can all learn so much from each other. Oh- and “crap-tastic” needs to be in the dictionary ! lol

  3. Your story is amazing. It is definitely compelling. I am amazed at your strength and deeply interested in your stories! 😀

    I’ll subscribe and follow you! Please sub my site too! ❤

  4. Just found your blog through our friend Stumptowngirl. I’m curious, after having your stomach removed, what is put in place? Any feeding tubes through your intestines?
    As for the pelvic floor dysfunction, I’ve not only been there but worked for a physical therapy clinic that specialized in this and saw many, including myself, overcome those stubborn muscles. Not sure if you tried it but go to http://www.apta.org/apta/findapt/index.aspx?navID=10737422525 to search for a PT in your area and click on Women’s Health as specialty. Definitively worth a try.
    Good luck and check out my blog if you get a chance, try to offer some tips here and there through my own experience.
    http://mygastroparesisjourney.blogspot.com/

  5. Surfing the waves of the web I am pleasantly stranded in your interesting blog.

    I write under the pseudonym of Josè Pascal (a descendant of the great Colonel Aureliano Buendía).

    I invite you to visit my “italianglish” writing blog http://parolesemplici.wordpress.com/mytinbox/.

    I define this blog “In parole Semplici” as a “virtuacultural tin” box where they are guarded thoughts, memories, images, sounds, and simple stories”.

    I dream an intercultural blog. Already involves more than 100 authors/friends.

    If you want to participate and to have more informations send me a letter to inparolesemplici@gmail.com

    Good life and I hope to soon

  6. go get em tigre. you are rad- i can tell from your writing. way to go keeping your chin up. it’s gotta be interesting; you must attract a lot of folks w/ similar woes. i too suffer from some dumb stomach luck; ie: crohns. wack! but whatevs, its annoying but we have so much to be grateful for. you are inspiring. (:

  7. My eyes widened in shock when I read : “I had my entire stomach removed.” I was wondering to myself, “how does this girl cope?” I felt a little better when I read that you laugh about some of the things, but I still want to know exactly how you cope with this. That’s why I’m willing to keep up with you blogs. : ) Stay strong and bright – and I hope you do get that strawberry cheesecake.

  8. Wow, that’s pretty intense. I think in a way everyone would love the idea of not pooping, haha. I am following :]

  9. I commend your bravery and honesty. Not many would share such personal details of their life with those they may not know. I love that you utilize the art form of poetry to convey your thoughts and story of your life; you do it so wonderfully! I look forward to reading more of your work!

    -Onelifethislife

    • I never thought of myself as brave but right now, I am in the middle of a whole table of burgers…seriously! So maybe I AM brave…but seriously, thank you so much for your comment…I appreciate it very much… 🙂

  10. I have said so before but ur blog is just amazing and so helpful to me. We haven’t had to remove my stomache or intestine … yet….but things are rapidly deteriorating and may head that way. I have the hardest time figuring out my diet…and actually sticking to it…I mean it is so dang hard when everyone is eaing pizza or spaghetti….I always think, “Oh one small slice or one small spoonful wont hurt’ then I find out oh so different. I sometimes cause my own misery by eating. I’m sposed to stick with babyfoods/liquids/ensure but its just so difficult! And I am on alot of meds, plus all the mirilax, colace, castor oil, suppository, etc…but even with all that, sometimes produces only once a month…and this past weekend I gave birth to something the size of my damn head, ripping everypart of me on the way out…I never want to go thru that again…so I’m trying to get serious about my eating…and did great all week…then today my hubby came home with subway chicken salad…and I thought a little wouldn’t hurt…my guts are telling me otherwise. How do you feel satisfied when hungry…no enjoyment of food…I love food…lol but I’m my own worst enemy somedays…you would think i would have the will power to eat right, when I know I could literally die from a blockage or perforation!!!! Ugh. Anyway…I just wanted to tell you again how I admire you and your openess and to tell you how much you are helping others by sharing it!
    Tammy

    • Thank you so much Tammy 🙂 I admit that there are days, i just say screw it and just succumb to food (I pay for those days, of course) but in that moment, I guess I just don’t care. I have more better days now than bad days but I still struggle with knowing that I will never have a piece of carrot cake (with cream cheese icing) again. Don’t be so hard on yourself, you will say…you will do all you can to focus on good eating and doing what you are suppose to…then it will come crashing down and you will start all over again…the difference in knowing you are human and you will want to do and eat all the things your body wants…will help you be more at peace. I think one of the biggest issues with people with digestive issues is that, we used food in so much of our lives. Joy, sorrow, celebrations…everything deals with food someway…when we can’t go back to food, we wonder what can we do. I never ate for comfort, but if I have emotions that are intense, I think, Man I would just love to eat a grill cheese sandwich, read a book and just veg…and even though I can do the last two things, it’s just not the same without that cheesy sandwich. I try everyday to manage my emotions and do other things to help me out…like blogging 🙂
      I hope you feel better and that things get better for you and if that happens not to be the case…I hope you can come to manage without too much stress.
      Wouldn’t it be nice if they made an Ensure that tasted like pizza…just sayin 🙂
      Be well…
      Kat

  11. Life is sure about the Journey. People with serious medical problems at a young age, who still look great, seem to understand this early on. Too bad healthy people don’t “get that” until it’s too late. Perhaps that “secret” is in the “Ensure” we all have to drink! 🙂 Hang tough.

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